Thanks Christina for sharing this as you think of me. It makes me smile 🙂 So, I share this as I think of you to be a gift that keeps on giving 🙂 Happy Smiley Thursday!
How do you APPRECIATE LOVE in your life?
It’s fascinating to see my mum is on par if not fitter than me post chemo. She even joked and call me a nan haha. I love her beyond words tho. Now, I can empathise how she feels. My movement and speech have slowed down. My energy level has gone down drastically.
I had fun with mum. We played tennis wii together. But even doing one round takes a lot of energy. I would recommend wii for in house fun exercise if you have chemo seeing as we should avoid public places. Weather is a bit yucky too this time of year. I may get creative and transform dinner table to ping pong match haha.
My weight has gone down to 61 that’s 5.3kg of fluid gone in 2 days. My face is less puffy now. I hope I don’t lose too much weight before next round. I’m sure my lovable mum will fatten me up.
My nausea seems to be more manageable with those extra drugs given to me. The dull body ache and fatigue have become more prominent but at least I can sleep it off. The only notable pain is my tummy pain. Other than that all is well 🙂
The most important thing is LOVE
– Mum’s wisdom
D29 of 280ish day chemo
Breakfast time with mum this morning 🙂 She is the bestest. She cooks me chicken broth with ginger every morning. She is having her yummy chicken noodle which I’d love to have some if I could. My appetite is still not quite there yet but at least I still can eat something small. I have been having small amount of quinoa (for fibre) porridge with chicken mince (protein) as well.
Today, happens to be my late dad’s birthday. He passed away in 22 Nov 2012 and changed my life. His passion to help others made me pursue my career change from IT to life coaching. He is a kind man. I am forever grateful for everything he has given me and every wisdom he has shared with me.
My parents have given me so much love, kindness and positivity. I am giving my credit to them for making me the person I am today. Love them always more than words could say xx
D29 of 280ish chemo
Can you make a SMILEY face through pain?
In my 5 days as an inpatient, I got daily injection with CLEXANE to stop unwanted blood clots due to chemo drugs. I asked the nurses if they can make a smiley face and they comply haha (will see if I can take a clearer pic of it). Be creative in making fun out of unfortunate situation. You’ll get a smile out of it! 😀
Every second days (D6,8,10,12,14), I have to inject FILGRASTIM to help increase my white blood cells. Still stings but I’m getting better at this.
Quick report: I’m still unwell but feeling better from first round. I got sent home with more drugs. Another amazing cancer friend, Julia Watson, told me about EMEND which seems to help a lot with my nausea. She said the doc only gave it out if you get really sick. Apparently, because it is expensive (about $150). I was given a tablet of EMEND on Monday morning. They said it lasted for a few days and it seems to help. YAY!
I also believe it’s my mum’s devoted prayers for me and her abundance of love that makes everything better too. She makes yummy chicken broth and chicken congee for me. It is great news that I can eat even just a small bites because I couldn’t eat anything for a few days last round. Then, again it is a different drug but I have been told every round will be more managable.
I also found out that I am allergic to PRAMIN / MAXOLON which caused me locked jaw.
My weigh now down from 66.3 kg last night to 63.5 tonight. I have lost 2.8 kg worth of fluid in a day. I’ll be expecting more fluid / weight loss in the next few days. I hope I don’t lose too much this round. It is bizzare to find out you can stack on/off that much weigh in a day.
Good night, rest well and end your day with smile 🙂
D28 of 280ish day chemo
Sending out a healing hug for you
Can CANCER change our lives to be a BETTER person?
I met a lovely lady called Deb today. My second cancer friend who is single *hint* – you’ll get the joke when you watch the video. I have to catch her again to share all her tips for wigs and makeup. She asked what should she say on the video and I said,”We’ll figure it out. Let’s be spontaneous.”
FYI : All videos are unscripted. I’m allowing the message of the day to present itself as it meant to be.
PS: You have done amazing Deb! Will have to do round 2 with you 🙂 Big hugs to you and your lovely children. Also, to Katanya her daughter who helped recording this!
PPS: Thank you for the visit and cuddles :
– Jes with her brownie and nougat
– My brother with his love who ducked out during his luunch break.
– Amy with her life saver fruit tingle (great for your taste bud!)
– Lawrence with his cutie pie massages and care hehe
– Kye and Aimie with Ben & Jerry choc ice cream yum! And Krispy Kreme donuts.
– Jessie and Emily with their big smile and cuddles for me
– As always the staff at Peter Mac : see you again in 2 weeks! 🙂
Arrived home at 10.20pm tonight yay! The drugs have affected me but I know it will pass. I weighed myself at 66. The heaviest I have been in a long time. I put on 6kg worth of fluid which isn’t bad considering I consume about 5 litres drugs daily worth 25 litres. Lawrence said I look like a puffer fish haha.
This time, I got sent home with more drugs than my first round because my side effect especially my nausea was quite severe. I am hoping they can make it more managable for me. Other than that I just have to sleep and meditate ha 🙂
D27 of 280ish day chemo
How do you KEEP GOING when things get tough?
I am not feeling well since last night and behind in uploading hug photos from yesterday and today. Will do them tomorrow when I’m better. I had to get Julie to help me with the video today. Thanks Jules for the visit and help 🙂 I feel weak even to hold my phone probably because I haven’t been eating. The doc and nurses are on top of it and tonight they are going to give me different medication to help with my nausea. Finger cross, it’ll work 🙂
My first hug of the day was Gemma the nurse. She is so cute. She came over to say hi as I walked to the toilet.
A smile (or hug with love) keeps me going…what is yours?
Ps: Shout out to Julie, Jenny, Mark, Peter, Lawrence Katharina , Kim for the visit and laughter. Also, the lovely staff at Peter mac who share their hugs and smiles with me.
D26 of 280ish day chemo
Hugs #49: Lilian who looks after my meal. I’m not sure what her job title is. But again a title is not as important as her heart! She is adorable! I asked her if she would like a hug and her face brightens. She said yes, opens her arms and gave me the warmest hug. Then, she said,”This made my day.” I can’t stop smiling seeing her smile. My job here is done.
Moral of the story: Go and hug people, you never know how you can brighten their day with one simple hug!
Hugs #48: Rachelle visited me and gave me her infamous jiggly hug ha 🙂 This awesome newfound soul came to my workshop on 13th March this year. The next day, she sacrificed her lunch break to support my Hugs For Change project which resulted in hugging 439 random strangers at Fed Square. I am amazed by how much kindness a stranger gives to you and she has been a great supporter of me since. She is too cute, she bought me a set of Bond’s jacket and a trackpants. Thanking you and loving you Rach!
Hugs #47: Diana, my sister in law. She bought me yummy Indonesian food for dinner. The chemo drug has started to hit me and my appetite is going away. I was given anti nausea tablet (I have chemo brain, I have to ask the nurse again) and it seems to work half way for me to still be able to eat. I didn’t have my breakfast this morning – the smell of food really put me off. At least now I know there is drug that can make me somewhat eat again even if it is not much.
Cancerpedia: It is recommended to have regular small meals to prevent malnourishment. Considering that I lost 3 kg last round, I am learning new strategy to cope with these changes in my body. Hopefully, this round won’t be as harsh.